The Unexpected Present

,

One In A Million

king chess piece

Three weeks ago this journey started in the Bon Secours Hospital ER and after a most turbulent and unsettling chain of events since the last post, I got some good news and hugs from an ICU nurse. First, an Infectious Disease (ID) team, like a Greek Chorus, solemnly came in bemoaning that Yuri is a very sick man. They didn’t know the cause and said he had no infections, (always look at the bright side of life, right?) Nevertheless, a very sick man. I get it.


They look at things from a clinical perspective whereas yesterday we had a meeting of great minds (including Yuri) where the medical hierarchy was explained, what these ID consultants are looking at, and what the treatment plan will be. Yuri’s eyes followed the conversation, my concerns were answered, and when the doctor finally said, “if this was my relative, I would do it.” I gave consent.

The pieces are falling into place. This morning I got a call that all is well with Yuri and the doctor told me that she sees him being very strong – his lungs are healing and working. He is cognizant and understands where he is and why he’s there. Very positive and hopeful that his other organs will recover. They are slowly weaning him off the ventilator. A good friend working with patients recovering from the ventilator is coming onboard as a rehab specialist. He will need to be ready for what will be coming next.

One in a million. An extremely rare form of systemic Vasculitis that affects small- and medium-sized vessels in many organs but most commonly affects the upper respiratory tract, lungs, and kidneys. The cause is unknown. So rare. It affects one in a million. Yuri never does anything ordinary. A very complicated man. Currently, he is on treatment that will last a few weeks to stem the tide of this insidious systemic disorder. It’s wait and see.

But it’s a miracle from where we were three weeks ago when we came into the ER at Bon Secours. It’s the best news in three weeks. The prayers and good wishes have gotten us this far and I am very grateful to all the good people, good family, and friends. I am elated, remaining cautiously optimistic along with the doctors and the nurse that hugged me. Yuri and I spent a quiet visit together with relief plainly fixed on our faces. On my way home, I did buy a lottery ticket.

Related Articles

Yuri @Trumpets 1999

House Hunting for a Home for Yuri’s Music

The elusive House of Yuri Notes was to be a place to call home for his music—a place for the memorable moments of the past, present, and future. We sold his house in a flood zone in Roselle, where he lived and worked in a basement studio for twenty years.
Yuri and Jerry sing

When the Sun Goes Down in Neverland

June 16th was Yuri’s birthday. He would have turned 74, young enough to continue being the working musician that he was. He had a lot of music in him. Three years ago, on his birthday, he asked what had happened to him after the first vaccine-induced anaphylaxis shock ravaged his system to its core just as an earthquake uproots and traumatizes its bedrock.
Yuri in Nature

Requiem and Repast for a Renaissance Man


Memorial Day is Opening Day of the summer season, yet for the past two years, Yuri and I spent the weekend and weeks following in the ICU. This year, on Saturday, family and friends gathered at a morning memorial service, requiem, and repast commemorating the 40th day since Yuri’s spirit and essence left his physical self, ultimately melding into the universe of our collective consciousness.
Sviato Yuri icon

On Name Day, It’s All In The Name

Today is Yuri’s name day. May 6 is St. George’s Day. Name days, these traditional feast days, hold a unique significance as they commemorate a particular holy person, often a saint or martyr, and celebrate an individual's given name. They are not just collective holidays marked by national calendars but personal celebrations
CK+YT @Woodstock

Telling Our Story

We find a purpose in life, not just a lifestyle to live by, taking on life’s challenges with words, music, time stamps and postcards.

HOW IT STARTED
Air Guitar Wedding

Who, What, Why Is This Happening?

ambulance

Grammarly Stands with Ukraine

Together with the UNITED24 fundraising platform, Grammarly is raising money for ambulances in Ukraine. We invite you to join the fundraiser by donating
HERE

 To all of Ukraine, we stand with you and are sending aid. To everyone else, we ask you to declare your support for the people of Ukraine, who continue to resist the unprovoked Russian invasion.

UA flag
EXPLORE