The Unexpected Present

, ,

It’s a Summer Breeze


Today would have been my mother’s 99th birthday. Born in 1922, she changed her birth year to 1923 only because she didn’t want to be two years older than her husband, my father. She regretted it when the social security age came around and she lost a year of benefits. Twenty-three years ago she died on this day, her birthday. She was 75 years old.

It was a beautiful summer day, perennial flowers were still in bloom, her vegetable garden ached from neglect since only eight weeks earlier she was diagnosed with an advanced brain tumor, a glioblastoma multiforma. No one knew very much about it at the time, the doctors recommended brain surgery but warned it would only prolong life not necessarily the quality of life. Despite a variety of unsubstantiated “cures” like powdered shark fin, the medical professionals all said, there is no cure. No way out.

My mother’s inner sanctum knew this. She quietly prepared the best she could in the short time she had before the tumor overcame her. She was home surrounded by her family. The summer breeze made the white curtains billow like the sails of skipjacks on the Chesapeake Bay. The garden was there unattended for a time until my father took up the shovel to turn it over for the next season.

Quite a different situation for Yuri. His Brain, the Chairman of the Board of Directors for Human Body Ltd knew it wasn’t his time. Under deep sedation, his internal organs went about their essential repairs, his willful mind went on a walkabout of a lifetime, meandering through hallucinatory dreamscapes often intertwining with ICU setting of machines, a backdrop of blinking instruments flashing vital numbers while dispensing medications to put out the conflagration that had spread as rapidly as the wildfires out in the West.

Today is three weeks since his arrival home from the Rehab center that brought him back from a long hospital stay to a home ready for health restoration. We’ve overcome the first week of extremely (for us) difficult physical and logistical challenges – physical transfers, doctor visits, medications, and tube feedings. After that, during Week Two, Yuri’s photo having a beer shows him looking pretty good, and sometimes it’s hard to recall the days, weeks, months when it looked like his time was dangerously close to coming to the end of the line.

I watch the discipline and focus on all of the exercises and movements for him to relearn as he becomes more self-sustaining and not as reliant on me. His voice is coming back. Swallowing practices takes him from soft foods to textures and flavors he is savoring. His motivation impressed the Home Care team so much that they add more to his daily repertoire for the return back to normal. Back to the ability to face the Unexpected Present with a sense of humor over the things we still have little or no control over like when he sneezed and the liquid squirted out of his PEG tube like a spouting fountain.

The doctors are surprised, astounded at what Yuri has gone through to where he is now. Happily, they send us off until another month from now. The Visiting Nurse stopped visiting. The Speech Pathologist is discharging him. Yuri is graduating from Occupational Therapy. The Physical Therapist is coming only two days a week and recommending Outpatient Physical Therapy. We told the G.I. we want his feeding tube out. Scheduled for removal a week from today.

New beginnings for this summer day. It’s his time. And he’s making the most of it. Can’t wait for what he’ll be making for dinner tonight.

Related Articles

full moon

Standing on the Edge, Living in the Moment

Spring is in the air—rebirth, renewal, and a return to the garden. Having a birthday in Spring always gave me a breath of fresh air. A March wind cleansing, although at times the winds can be fierce, wreaking havoc
violin in case

Three Years, One Day, A Lifetime Away

Three years, one day. On March 8, 2021, we took the first Pfizer shot—three years ago – that turned into a vaccine injury for Yuri, which upended our lives. We haven’t recovered.
Valentines Day

Love Letters on Valentine’s Day

On Valentine’s Day 2011, Yuri released Love Letters, a CD that, through original music, told the story of our courtship, romance, and an unexpected present: marriage.
Pat Guadagno&Tired Horses@Stone Pony

Rockin’ Pneumonia+the Boogie Woogie Flu

The Stone Pony, one of the world’s best-known music venues, opened its doors to concertgoers on Feb. 8, 1974. Like Yuri, a player on the Jersey Shore for fifty years, the Stone Pony is a survivor.
CK+YT @Woodstock

Telling Our Story

We find a purpose in life, not just a lifestyle to live by, taking on life’s challenges with words, music, time stamps and postcards.

Air Guitar Wedding

Who, What, Why Is This Happening?


Grammarly Stands with Ukraine

Together with the UNITED24 fundraising platform, Grammarly is raising money for ambulances in Ukraine. We invite you to join the fundraiser by donating

 To all of Ukraine, we stand with you and are sending aid. To everyone else, we ask you to declare your support for the people of Ukraine, who continue to resist the unprovoked Russian invasion.

UA flag